A wonderful young lady with Systemic Juvenile Rheumatiod Arthritis and Macrophage Activation Syndrome. I seem to defy the laws of modern medical science. We are home, and the wacky regimen of meds is working........for now. I know that God intended this life, and has a plan for me, be it dying tomorrow or living to be 100. I like to think that even though my life is tough, everything I've been through (and will go through) will help someone to not have to go through their life quite as hard.
Tuesday, April 22, 2008
Wednesday, April 16, 2008
Update
Hi Everyone.
I thought I would update everyone on Kayla's Medical stuff. She has actually been living life like a teenager. We Love it.
She has labs weekly. Infusions monthly. She had 3 on Monday. Unfortunately her port has quit working. It took 3 1/2 hours & 7 sticks to get an IV started. 10 1/2 day. The best part was being able to come home & sleep in our own beds.
Norman, the hospital moose made a visit & Kayla ate lunch with child life & friends she made when she was inpatient at Providence (Aug. - Oct. '07).
We will be making a trip to Seattle the first week in May. She will have numerous tests & will be having her port replaced. We hope to only be there for about 10 days. We have to be back for her Sisters graduation on May 15Th.
They have put her transplant on hold for an undetermined amount of time. Her Rheumatologists and her Pediatrician are keeping a close eye on her. We will update the medical part during her visit to Seattle.
Thank you for all your Prayers
Jeneice & Rick
I thought I would update everyone on Kayla's Medical stuff. She has actually been living life like a teenager. We Love it.
She has labs weekly. Infusions monthly. She had 3 on Monday. Unfortunately her port has quit working. It took 3 1/2 hours & 7 sticks to get an IV started. 10 1/2 day. The best part was being able to come home & sleep in our own beds.
Norman, the hospital moose made a visit & Kayla ate lunch with child life & friends she made when she was inpatient at Providence (Aug. - Oct. '07).
We will be making a trip to Seattle the first week in May. She will have numerous tests & will be having her port replaced. We hope to only be there for about 10 days. We have to be back for her Sisters graduation on May 15Th.
They have put her transplant on hold for an undetermined amount of time. Her Rheumatologists and her Pediatrician are keeping a close eye on her. We will update the medical part during her visit to Seattle.
Thank you for all your Prayers
Jeneice & Rick
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