Hello, hello, hello. How are we today? We are splendid, right? Right? Well, we would be better if we coulod eat, but hey, it looks promising for getting out of here for my birthday. Maybe even for tomorrow! I sure hope so, I was really looking forward to that party! I won't be able to eat anything, but I didn't plan on stuffing myself with chili and cake anyway. The only thing I can really have is non fatty foods, and that's when my numbers are normal again. We haven't gotten them back yet, but I will post them ASAP. I also have some really really really big news, but I'm gonna make you wait! TA TA for now!

Okay, so I've finally broken down and learned how to read my lab results! I mean, why wait for the rents when I only need to know what a few numbers mean? and besides, they have an H or an L next to it to say whether it's too high or too low. But anyway, most of my numbers are coming down. At least, all the ones that need to. my Amylase and Lipase are two markers for the pancreas, and they are coming down nicely. On the twenty-fourth, it was Lipase 407, and today it is 281. Amylase was 638, now it's 457. If they keep coming down at this rate, there's still a chance I can make it to Ruth's party. Even if I can't eat, I'd still like to come! They seem to think if I am not out of here by then, I will most definitely be out by my birthday, but that's only 2 days away from each other! But whatever. At least my line drew nicely this morning. She didn't even have to wake me up to stand me on my head or anything (no joke, they really did tilt my bed up so that "gravity could contribute to the blood flow up to my line. what kind of bull is that? All it did was give me a headache!)! Maybe there's hope for me yet. speaking of, my headache is gone, and I got rid of it without acupuncture! (I don't know why, but I just really don't want to do that). Well, keep praying, it seems do be doing some good! By the way, if you haven't noticed, my birthday IS in a few days (hint hint)! Gotta, go, child life is here, there is a therapy dog that I think is soooo cute! She's a corgi!

Okay, I am sooooo confused right now! The GI doctor said today that the first two admissions were not pancreatitis. The first one was teflitis, and the second was for God only knows. This one is for pancreatits. I just don't see how he sees his plan. He thinks that if we wait for my pancreas enzyme numbers to normalize, and then I can eat, get out of here, and everything will be honky dory! I really don't see how that is possible though, since the last three times we have tried that it hadn't worked worth a darn! But hey, he's the doctor, right? He seems to think that I will be out of here by my birthday, if not in time for Ruth's party. I just have a hard time putting all my faith on that little string of hope. Maybe I should though. Maybe it is a God- thing, and if I do the whole full faith thing in Him, then it will all work out, and I'll be a happy healthy kid in time for my birthday. Now that I put it down on paper (or in this case, keyboard and monitor) it sounds even more far-fetched. Well, on a happier note (which I always try to leave you guys on), My line drew like a champ.......yesterday. Today, it drew a little bit. The trick? Holy water from the church my Grandma goes to. Another really awesome thing is that Ralph's (My grandma's husband) friend is going to Rome, and He is going to have them pray for me. Can't get much closer to pure holiness than that, can ya? Just keep praying, I really want out of here. Being sick has made me miss so much of my life already, I will not let it spoil any more.

Phooey. They let me eat, but I cramped up almost immediately, so now I'm NPO..............again. I highly doubt I'll be out of here for my birthday, which thoroughly sucks. The longer this takes, the less faith I have. But I guess all we need to do is keep praying. Hard. That and they are really pushing for that tube. Ans Seattle is frothing at the mouth to get me into their clutches, but I won't go down at all, and if I have to, then it will be AFTER my birthday. I don't mind the fact of being in here for it as much as I mind not being able to eat. I mean, I've been in here for Mom and Dad's birthdays. On a happier note, my line was nice to us today and gave some blood!




to hopeinalaska (Corrine and the group),
I'd love a visit, but hopefully I won't be here. I am always open to visitors, it makes the time go by much faster! (this may sound mean, but I'm not surprised it's only us left. Some of the people last year were really lacking in faith, which is really unfortunate. Faithfully is the only way to live!) But most definitely, I'd really appreciate it.

Nobody can possibly be as pissed off at the world right now as I am. They not only won't let me off clear liquids, but they want to put in a feeding tube (here's the link to see what it is, although it's pretty self explanitory: http://www.oralcancerfoundation.org/dental/tube_feeding.htm , so I hope this link works). I'l let everyone know what the outcome of that will be. In the mean time, keep praying I get out for my b-day!

To HOPE IN ALASKA:
I would love the information on the confirmation classes. I really miss coming. Hopefully soon I will be able to return.
Thanks
Kayla Cornejo

Well folks it's another day in ICU. Got neck bone lockup syndrome. Maybe from meds again. They seem to be the evils these days. Good news is they dose me up with a drug called versed
that makes me real goofy but my neck can move again. They have figured out one of the bugs growing. Hopefully they will figure out the rest. I am on clear liquids today. If my blood work numbers look good I may be able to move up to full liquids. Anything is better than NPO(NOTHING BY MOUTH!)
Andy & Laura pick Dad up from the airport. It was nice to see them before they left. We all hope & pray they have a safe trip to Kalispel. We will sure miss them.

Ok, so we have good news, and bad news. that's how it always has to be though, right? One: They thought I might have meningitis, but I don't. Two: I have some sort of infection. it might be on my line, it might not. Three: My line is working, sort of. It will let things go in perfectly fine, but drawing blood out of it is a different story. Not much else going on,. it doesn't look promising being out for my b-day, but I'll let everyone know when things are more clear. love to all, Kayla and fam.

I really don't feel like it, but I'd better, just to let everyone know what is going on. Well, they took a film of my stomach this morning, and the outcome isn't very bright. It looks like some of the contrast I drank on Wednesday is still where it was today as it was then. that means that my bowel muscles aren't working properly. There are a few different ways of handling this. One is, of course, medication. Another is surgery, but who want to have that kind of surgery? So what they said is that it might be the lipids that are keeping my pancreatic numbers elevated. If that's the case, then we should be able to control it with meds, I think. They are going to stop my lipids and then take another film either tomorrow or Tuesday. If nothing has changed, then she will let me eat, and see how long it takes for me to get sick again, which is a blessing and a curse. I am allowed to eat, but I know it will make me sick eventually. the good news is I can have whatever I want to eat, once I'm on the full diet. There are also a few steps until it get s unbearable. I am either happy, healthy, and out of the hospital, here and sick, in Seattle and happy and in the hospital, or sick in Seattle. I really want to be out. Not just to be out, but it's my B-day in 15 days! Oh, and if you couldn't already tell, I doubt I'll be in confirmation very soon. Just pray that I can get out before my birthday. I don't care about any other holidays I have spent in a hospital (almost every one), but my birthday cannot be one of them!

Good news turned bad. I am back, after freaking less than twenty four hours, in the hospital! My gut is still messed up, and hopefully third times the charm. They think it might be another one of my meds causing it. but now they seem to think it's lone of the ones that has been helping me. But who cares,? Linda and her hubby (from Good Shepherd) visited me today and gave me a gorgeous bouquet of fresh cut flowers from their own garden! And, having said that, I wouldn't mind a visit from anyone really. Mom and dad can only be here so much. And on a better note, I agree with Ruth.....we all look better bald, and everyone should have to do it at least once. I mean, heck, Andy's done it! My dad is (partially)! Well, I haven't been feeling too bad today, so..........Well, at least5 every time I come in here, my symptoms get better faster and faster. Maybe they can finally figure this thing out, even if the outcome isn't what we'd have preferred. I guess just hope for the best. I'll update as needed.

Ha, we have good news and bad news. Good news: we are getting out! Bad news: we don't know why. They did a biopsy while they were in there, and they are still processing the results. We figured we could wait for them the grow their bugs at our house instead of here. So hopefully they can figure this thing out soon. Well, good news is it doesn't matter what I eat, it will still flare up whenever(not really that good of news, but at least it isn't anything we did)! Well, I've gotta go watch Brittany Spears' big mess ups and stuff. one thing I have to say about that: Who looks better bald???

boy does mom know me well! it is around 7, and I am back in business...........sort of. Mom pretty much said it all, but I can't let down my adoring fans. now, adoring fans, I must go watch scary movies until my eyes pop out with fright! BUNDLES OF LOVE!!!!!

Kayla

Hi Everyone! Kayla is pretty much out of it. So I will try to update you. (Not as good as her own words & feelings!)
She had endoscopy & colonoscopy this afternoon. No Crhon's!! Thank GOD. No Ulcerative Colitis. A few spasms in her colon. This could be from one of the 19 drugs she takes. They took
a lot of biopsies. We should know the results by tomorrow or Wed. She will be able to start eating regular food by tomorrow, slowly getting back into it. That will make her HAPPY!
She will probably have a lot to say when she is up. Thank you for all your Prayers. They are all we hang onto sometimes.
Take Care
Rick, Jeneice & Kayla

http://www.emedicinehealth.com/colonoscopy/page3_em.htmHi, it's gotta be quick, cuz I've got a Nazi Nurse tonight. Don't worry, it will be. Omg, this has got to be one of the worst procedures I have gone through yet. I'm sure you all know what a colonoscopy is, but for those of you that don't, here you go: http://www.emedicinehealth.com/colonosopy/page3_em.htm . It pretty much explains it there, since I really would prefer not to go into great detail on here. The good part of it is that I may be on a full liquid diet by tomorrow night. It really sucks though, because part of the prep for this test is I have to drink this contrast that has a laxative in it, and it tastes exactly like warm salt water. BLECK!!! The only reason I can tolerate it is that I will be able to eat (hopefully), and at least I will hopefully find out what it is. Just please keep praying, especially for strength for me to keep my cool. I love the staff here, i really do, but a girl can only take so much before she cracks! Love to all,

Kayla, (oh, yeah, and Rick and Jeneice too)

DUN DUN DUN..........................no more good news, yet. I had a central line put in yesterday. (that really hurt!) It is called a Hickman, and if you want to know more about it, go to http://wwwcancerhelp.org.uk/help/default.asp?page=2586 . I also have to get a colonoscopy on Monday, so i can't eat until then, that is if they don't find anything to interfere with anything. It was a wonderful surprise though, because Andy and Laura came to visit me on Tuesday night after they dropped Andy's uncle at the airport. Then today, an even better surprise was that Ms. Velma Peck came to visit me. Well, I'm gonna go now, my Hickman is still pretty sore. By the way, speaking of THAT, I suggest you don't research it if you have too weak of a stomach (although this website isn't too graphic!) See ya'll later. I probably won't be on until like Tuesday, cuz I will be pretty unsociable until then. Gotta go, my doc is here!

Hi all. more bad news. I'm back at Prov, still not sure what is a going on. They seem to think it might be Crone's Disease, but I'm already on the treatment for that. They want to put in another PICC line. Joy. But whatever, all I care about is figuring this mess out. I am still unable to eat. Dad went back to work yesterday, which is a bittersweet thing, since it would have been wonderful to have him here. He let's me watch scary movies. Well, I think I'll be leaving now, I've got a 10 $ bet going with the child life specialist to see if I can be the first to find all the items in the find it tube. there is all the alphabet dice, a pony bead, a penny, a balloon, a baseball, a block, a butterfly, a candy cane, a car, an eraser, s top hat, a marble, a pom pom, a rubber band, a wiggle eye, a safety pin, a smiley face, a flag, a fish, a star, an egg, a ring, and a snowflake. I only have to find the penny, the butterfly, and the marble. Wish me luck!