Thursday, October 22, 2009

Okay, due to popular demand (THAT I DON'T SEEEE), I have started blogging again. I think there must be something going on with blogger, cuz I've heard a lot more people have commented than my little comment-counter says......aaand........AND.....Mom said she posted while I was in the hospital. = X oops. Yeah, now that my big mouth has told you, you know I was incarcerated for a small bit. Just a little bit. Not a big enough bit to even mention, really. But I will, anyway. So, pretty much just the usual...blackouts, med changes, and lymphoma... ; )

No, I don't have it (thank GOD), but they thought I did. I'm not sure which drug they thought it was from (they thought it was the Etopocide), and it's not really like they could figure it out...every med that I'm on says that that could be a possible, erm, "side effect". They have to list that on every medication, to be honest with you. I know these things...mostly because my mother studied as a pharmacy technician, but a little bit from my own experiences with the dreadful pamphlets from my drugs = /

Okay, and as some of you know, our darling Gracie passed away this summer...a few days before we got home from Nevada =...( and now, a few months later, we are faced with another trying time....my uncle is sick. Real sick. We're going down to see him. I'll post more when I know more.

All my love.

Saturday, August 22, 2009

Okay. Ooooookaaaaay. BLEEEEH. So, as many of you know, we're back home, and I am settled (not) back into school. Tons of homework, tons of schedule switches, but over all I'm fairly excited. I am suuuper excited about all my literature classes, especially English 3. Speech will hopefully help me to open up a little bit around people who I don't know, you know? and AP Biology might not be AP much longer, if I can't keep up with the math. I know it's not my fault that I've been sick and missed a lot of work the past few years, but that won't make a difference if I can't keep up. But I'm gonna talk to my teacher, see if my skills are good enough. And I guess there's this plan called a 504 plan or something, but it'll help me out. Explain to my teachers more in depth, get me a set of books for home, even get me a tutor (PLEEEEASE GOD! PLEEEEASE!!!). But I'll talk more later, cuz I'm zonking out. Peace.

Friday, June 12, 2009

So. So, so, so. It's been a loooong time coming, but as some of you already know, I've been re incarcerated this past week. And I'm sure you all are chomping at the bit, foaming at the mouth with questions; "who, what, where, when, why" kinda thing. And that is just what I'm going to tell you!





Who: Hmmmm....let's think hard for a second....if you guessed me, you win! If you didn't, well, it's okay.





What: Well, this stumps everyone every single time. Well, they know what it was, (JRA), they just have no idea what caused it to go wacko on me. But luckily my numbers were acting freaky, not just my bod. It's when my numbers are dotty but I physically feel okay that we get reeeaaaally worried.





Where: Where I always go when it's not Seattle (very flu-like things, sore throat, body aches. Mom was kind of worried, what with the whole case of swine flu) like last weekend. Not this past weekend, but the weekend before this past weekend. But not the weekend before that, because that would be last last weekend....Ha ha. Anywho. Well, I started feeling sick that weekend. We went into the ER on Monday, were in there for about 6 hours, coming out with a dose of inclusive antibiotics and a shoot-up of Fentanyl. We went home, hoping that 'biotics would kill any bugs lurking in the dark abyss that is my body. Not so much. I kept getting worse, to where I felt like I did before the whoooole thing, back in the fall of 2006. Not good at all.

When: So, on Thursday we packed up the motor home (had a hunch we would be staying. Okay, fine, the doc pretty much told us I would be staying. But anyways.) We load up the motor home and headed into town.

Where: Arrived at the ER about 9 p.m., and it took another 6 hours this visit before anything got done. They wanted to do a steroid pulse, but mom and I wanted to wait. I mean, those things are horrible, and it was, like, two in the morning! So I know it might sound, like, uber insane, but I demanded to be admitted, because let's face it, I was going to be admitted eventually. Might as well have all the luxuries right off the bat.

Why: And so the story goes for a few days, not much breaking the monotony of hospital life. Then my friend and his family (Trent, Sophie, and Wayne) came to visit. That was sooo nice. Such a welcome hiatus. We had a ton of fun playing Rockband. That visit was over much too fast, and then it was back to the same thing; boring daytime television, surfing the web, and the occasional visit from a visiting nurse, teacher, child life worker, or pastor.


This went on for oh, a couple of weeks. Then we finally got the all clear: numbers were normal (enough), pain was (getting) under control; well, enough to where we could finish things up at home. And so we did. And so we are. Still pretty achy, but of course, that's just good ol' me deciding to spice my life up a bit. But I'm well enough that I got my infusions yesterday; that should help out even more. And they gave me the green flag to go down to Kenai with dad for his training. Hopefully they will let the leash out far enough to where I can get down to maybe dust off that toy pony of mine (and of course earn some mulah down at the restaurant and trailer).


The Real Why: So you see, this was all pretty much just a little test to see if I could keep the doctors and everyone on their toes. But don't tell them, they still think they did it all by themselves. Let's just let 'em keep on thinking that. You and I, we know the truth. Everything was all under my control. This couldn't even be considered a hiccup, because it was aaaaall planned. ; )


Me and my tricks. Ya gotta love me!

Friday, May 29, 2009

I've had demands for a poem, so here you go:

Marshmallows=Happiness

Happiness is like marshmallows galore
Mini are the ones I adore
Ever tried roasting them for a s'more?
Let me tell you, it's pretty hard core.

People say happiness can't be bought
That it is earned and all that whatnot
I don't believe it, it shouldn't be thought
happiness can very well be bought.

For one can buy marshmallows which is almost the same
The thought of them sets my heart aflame
To say this I am not ashamed
I would climb a building and at the top exclaim
"Because of marshmallows, my life is changed!"

And there you are. A poem to (hopefully) make you smile.

Thursday, May 28, 2009

New post, New post, and nothing to say in it. Bah. I'm a tad crazy cuz I can't sleep...again! But that's okay, cuz it's summer, and I don't have to get up in the morning *happy dance*. I keep feeling the need to look back on all my posts. It feels really weird, because I don't remember hardly any of that. Isn't that the freakiest thing? You'd think that I would remember it vividly, but noooo. Maybe it was the meds, maybe it's just my body's way of coping. But I have plenty of reminders; boy do I. But that's okay. Well, mostly okay. Sometimes not okay. But whatever. So. I can now say I'm not a froshy anymore. Yay. I really didn't take too much flak for it. I kind of coast through the middle, which can be a good OR bad thing. And wow. I just fell asleep at the keyboard. Is that a sign? Goodnight.

Friday, May 15, 2009

Hey peeps.
Oh. My. Gosh. I am so frigging tired. I haven't slept at all tonight. And I am beyond bored. I found this really cool website called originalpoetry.com. It's way rad. You can post poetry on there, and I think even song lyrics. But anyway. I have lots to say. As some of you may know via Facebook, I am having cateract surgery. It's gonna be on my left eye, on June 29. And I will be awake for it. Well, They are going to knock me out for a few minutes, numb my eye, and then I'll be awake for the actual surgery.

So, Mom and I came into town (for those of you uncool (joking) people, town is Anchorage) last night because it's a lot of trouble to come in from home same day. Anyway. As we were walking out of the resteraunt, there was a drunk homeless native man. He came up to us and asked us if we had any food. Mom said no, and rushed us to the car. I felt bad, because I would have given him my leftovers. As we were getting into the truck, we found a bag of gold fish. Mom gave him those. I felt really bad. I cried! It just breaks my heart to see people so low. It makes me so sad. I want to help them, but I don't know what I can do. It hurts me to see a person like that. I know that a lot of them choose it, but that doesn't make a difference. They are still homeless and my heart goes out to them.

Monday, April 27, 2009

Well, I feel really kind of bad for that last post. I sounded way too excited. I also sounded selfish. How could I sound like that when someone is condemned to live a life of, quite literally, hell. And for that I am deeply sorry to you guys (sorry I don't know your names). I really hope I didn't, like, offend you or anything. If I did, again I apologize. I tend to do things before I think. My bad. I really do hope I can help in any way. Like my mother said, you can email or call any time. Sorry we couldn't provide a hope for a cure, but they are really trying to work toward that very goal. I would really enjoy talking with you, and I hope for the same in return. And with that very public apology (not that I regret it in any way), I am signing off for the night. To all you who read this blog still, you know I always appreciate fan mail (nah, but I do enjoy it when I sign on to comments). And with THAT note, I will really sign off.

Toodles, Poodles, and (why not) Noodles.

Thursday, April 23, 2009

So. I found out the trippiest thing today. There is a 17 year old guy in Kodiak, Alaska that has THE SAME THING I DO. I don't know if you guys know this, but it is beyond rare. I am soooo psyched!! I....I just hate that he has to do this too, but it gives me great comfort that there is someone out there who has/will have an understanding of exactly what I am going through (hopefully he hasn't/won't experience everything I have, though)! Sometimes we question the things God does, but then things like this happen. I hope that I can be of some help and/or support. I am just baffled beyond words right now! I wonder what meds he's on, ect. I know that's morbid, but still. I am a thinker. I have to think of that kind of stuff. I can't help it. This is just so, so, so rad! I know I might be sounding morbid right now, but I don't mean to. I...I just....I don't know. I'm just mind-boggled. Hopefully I can process it later. I despise so much to sound excited that his life had to get all flipped up, but it's really not that I'm excited about it. I am just excited about someone to help, and vice versa. And I probably sound like I'm on crack. So I'll stop it here, but will most likely be back soon (and I have a heap of homework due tomorrow. I am in the elite levels of Procrastination Land. That's right. You're jealous.)

P.S. also kind of excited to have something not boring to post about. Still sounds morbid, but there's no other way I can put it.

Wednesday, April 1, 2009

Well, well, well. I'm being sent to boarding school. My mother thinks I am inadequately matured, and am in dire need of help that she can't provide.



APRIL FOOLS!!!!

I absolutely LOVE this day!!! Oh, man!!! I forgot what I was going to do until now. Ex-lax brownies! DARN IT. Oh, well.

I would talk about everything I usually do, but I had to take an oxy, so now I'm starting to.....(five minutes later) oops, drift. Okay, I promise I'll me back tonight or tomorrow. Until then.

Wednesday, March 4, 2009

O.M.G. I am having the most amaaaaazing time!!! I love my family. And we've seen friends we haven't seen for a good 4 or 5 years! Let me be the one to tell you, nothing in Elko, Nevada has changed! Last night I got to drive my first deisel! I miss my friends, though. And my doggy. It was perfect weather when we left. In Seattle, the weather was awesome. in the 50's, sunny (a.k.a. sun was peaking through the clouds. That in itself is special.). Then we got the Reno. Pouring-A rain. It was warm though. We ate at Rail City Casino and Resteraunt (no gambling).
Then we went out to Grandpa Johns house. I LOVE MY HORSIE!!!!!

Sunday, February 22, 2009

Well, hel-LO!!! I know, it's been a while. And last post was not so happy. But I am sick of coming to my blog, and being reminded of it every time. I don't mean to sound callous, but....anyways. I can't WAIT to go down and see the fam. It's 9...now 8 days, obviously in counting. I get to see my Grandma Nonie and Grandpa Ralph (Dad's mom) and my Aunt Linda (Dad's sister) and hopefully my Uncle Chris (Dad's bro. Seeing a pattern here?). Then, though I'm not sure for how long, we (most likely just Mom and I) will motor on over to Grandpa John's (Mom's dad) and see my HORSIE!!! YAY!!! Well, it's almost 1 a.m., so I'm gonna stop here and continue tomorrow!
Ta-Ta!!

Thursday, February 5, 2009

This was Matt.
Hi guys. So, I have some really un-good news. Most of you know about the trip I went on in September. It was called Sunshine Kids, and Prudential Insurance sponsors it. Multiple times a year kids get to go on once in a lifetime trips, to do things, meet people, and just have fun. It is mainly for kids with cancer, but they make exceptions (as in my case). So, the group of kids I got to go with, there were people from all over the country. One of them, Matt, he kind of got on my nerves. Once I got to know him, he was actually really cool. Well, he passed away this morning. I guess he had common leukemia. He relapsed, and got a bad infection. His immune system was not strong enough to fight it, and he died. Please pray for his family, and friends. It was such a waste of life, him dying. He was only, like, 13 or 14. Just barely starting to live, and now he's gone. It just goes to show how fragile life is, and how you really do (forgive the cliche) need to live life to the fullest. It's a crying shame, but there's nothing we can do but console ourselves with the fact that he is in heaven.

Wednesday, February 4, 2009

Hi there. Hope everyone is good. I surely am. No homework today. I have almost A's in two classes and an A+ in one. My science teacher gave me a way high compliment today (that I was very smart, and should take AP Biology. We are filling in our transcripts for next year). I might take an AP English class too. And Sociology. And Craft Survey (so I can take art studio 2nd semester). And maybe Spanish (bilingual looks good on applications and resumes). I really need to see my counselor, but the secretary is being very uncooperative. She won't let me make an appointment, and I really need to talk to my advisor to see what I am supposed to do about my homeschooling stunt. I am in 9th grade, but am in English 2, which is a class I'm supposed to take next year. I was supposed to be in English 1 this year, but I must have scored high on the assessment test. I don't know. Enough talk about school. Sorry my blog is so boring (even if boring is good).

Sunday, January 25, 2009

Hello, friends. Hope we all are doing well. I am. Pretty much. Life is going pretty monotonous. Besides the fact that I need you all to pray for my family (again). One of our members (my grandmother) is having some health issues, and needs some support. In other aspects, it's all good. I've had a migraine for the past 2 days, but other than that...Going good. That's actually it! I am so happy to say that, since I was looking back on some previous posts and...well, not so good. Enough dwelling on the past. I will talk to you all later!

Wednesday, January 7, 2009

Hey guys. Can't be much, It's getting to be crash time. So. School is going well. I started small engines 1 and......*gag* health. What fun. I have to take my English 2 Fall Semester Final and my Drama 1 Fall Semester Final tomorrow. Pray for me. Please. I need to pass these. I am fairly sure about E2, but Drama, I don't know. I probably should, but I really don't care if I pass that final or not. I'm just glad that I can look forward to third period again (small engines). Science should be fun this semester. We are working on astronomy and physics. More hands on. So, that's all, pretty much. My life is boring. Please comment. If you read, please let me know. I don't know if anyone is reading this poor thing anymore. Okay, I have to go do my ritual, i.e. washing face, brushing teeth. I have added a not so pleasant part of brushing with peroxide and baking soda to whiten my teeth. It's working. Talk to you later.