A wonderful young lady with Systemic Juvenile Rheumatiod Arthritis and Macrophage Activation Syndrome. I seem to defy the laws of modern medical science. We are home, and the wacky regimen of meds is working........for now. I know that God intended this life, and has a plan for me, be it dying tomorrow or living to be 100. I like to think that even though my life is tough, everything I've been through (and will go through) will help someone to not have to go through their life quite as hard.
Monday, July 30, 2007
Hello!! well, we got the results back, and, duh, duh duh duuuh!!! They switched the dosage, added more antacid, and bada bing bada boom, we're back in business (hopefully)!!! Just in case, the doc ordered an ultra sound of my abdomen, just to be safe. And now for the best news I have ever given (lately, anyway) WE'RE COMING HOME!!!!!!!!!!!!! We have this next week of therapies, a final visit on Friday, then we're homeward bound. Been a long time coming, but we're on our way!!!! The only bad thing about it is that we have sooo much stuff to pack and haul home, it's not even a joke! A small price to pay, though, for being free........................
Tuesday, July 24, 2007
Hi everyone! good news and not so good news. Me and mom had a blast at Aunt Kat's this weekend, Happy Birthday Sammy! The big 1-0! It was super hot though, and humid toward the afternoon. The not so good news is that the new med might be causing problems with my pancreas, and we might have to get op0of it if it keeps acting up. I hope not though, since it's been the only thing that seems to be working. We get the test results back tomorrow, so pray and keep your fingers crossed it's just been a bad case of indigestion or something!! I'll let you know what the results tell us, when we do get them back.
Wednesday, July 18, 2007
Hello hello hello. There really isn't much at all to say, but I figured I would update anyway. Can't disappoint my expecting fans, can I??? I really and truly can't think of anything new, but there should be some news coming up on Friday. In the meantime, visit Ruth's blog and see how she's doing!!! Until then...........
Friday, July 13, 2007
Hey ya'll. Yesterday was a mad rush, so I had to wait until today to blog. I had a transfusion of IVIGs (these are immunoglobins, they don't know how they work or why they work, but thank God they do!). We went in and it was only supposed to be a few hour procedure. We were there until 3 this morning!! It was a major bummer, cuz Michaela was passing through, and we were gonna hang at the Ron Don. But nooooo, things got screwed up, as usual. No worries, though; life goes on. Just have to hope the next thing goes better. But it is 11:30, and I am utterly exhausted, so I'll sign off here. Ta ta for tonight!!!
Monday, July 9, 2007
Hello everyone. Not much to say, it's been pretty calm around here the last few days. If you haven't seen the news, it is hot hot hot here. They say it's gonna get up into the 90s! only three more weeks and we get to find out if we can come home or not. I hope so. I miss my bed and my dog. Well, breakfast is here so I'll let you go, be on when something changes.
Thursday, July 5, 2007
Okay, it may not be as long as I promised, but I have company, and I can't neglect my company can I?? The fourth was......an interesting experience. We were supposed to go over to Bainbridge Island and go to this whole fair thing, but by the time we found our way, the fair had closed. So then we just kind of drove around Bainbridge half lost, and stumbled upon a little beach. Since we were there and hungry, we hiked down to the sand and ate sandwiches (mine was authentic). It was nice though. There weren't many people at all, and the weather was perfect. I found tons of shells, I'll have to take some pictures of them and post it. After we were done with our gourmet dining experience, we headed back just in time for the 9:45 pm ferry. From then on it was smooth sailing, really (no joke, the water was super calm). The best part was the fact that we could see about three seperate public firework shows, as well as dozens of private ones. They had those puppies firing off left and right. Half the works you couldn't see from the previous smoke trails!! That concludes our somewhat traumatic yet oddly pleasant 4th of July. Hey, I am not going to complain at all about my first holiday as a free woman!!
Monday, July 2, 2007
Howdy to all. Kayla, Mom, and Dad all here together. Dad got in safe, through all of the heightened security (due to the terrorism in London the other day). Grandpa John, Trish, and Brandon are driving in sometime tomorrow, and are gonna be here over the 4th. Ever heard of Halibut Tacos?? They're supposed to be good, so we're gonna have those for dinner tomorrow night when they get in. Mom wants to go to this little island for the fourth, since there's supposed to be this big celebration fair thingy during the day, then fireworks after. It should be fun, I think. I probably won't be on till after the 4th, but I'll try. If not, there will be a long and descriptive post on the 5th or 6th, I promise!!
Subscribe to:
Posts (Atom)