A wonderful young lady with Systemic Juvenile Rheumatiod Arthritis and Macrophage Activation Syndrome. I seem to defy the laws of modern medical science. We are home, and the wacky regimen of meds is working........for now. I know that God intended this life, and has a plan for me, be it dying tomorrow or living to be 100. I like to think that even though my life is tough, everything I've been through (and will go through) will help someone to not have to go through their life quite as hard.
Thursday, October 4, 2007
Okay, now I REALLY feel loved. I have such an awesome circle of people in my life, and you know what they say about circles (they're the best shape because they have no end!) Well, I don't want to get any one's hope up, but it looks like I will be getting out of here today. If not, then first thing tomorrow. I have had three meals so far, with nothing gone wrong. I think what is helping is these enzymes they are giving me to take, so that my pancreas doesn't have to create them. I am not on a low residue diet anymore, but I am on a non fat diet. When I think about it, it's a good way to lose weight! There is so much more food available to me on this diet, believe it or not. Almost everything made now can come in low or non fat, even chocolate milk! There's something I remembered from a conversation about the transplant. They actually wanted to start the whole process on the 18th of October, but we said no, because I want to have a little time home before I go down for another half a year (well, 4 months, but that's if everything goes perfectly. I'm making it a little wider range, maybe 4-6 months)! One more thing before I go: there is a woman coming down to my room today to talk to me about my "unpleasant experience" in the OR when they redid my line. Three squealing surgeons, here I come!!!
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Well I guess I'll have to find SOMETHING ELSE to do tomorrow, since I won't be visiting you in the hospital! Woohoo!
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